Lună: iunie 2014

Dear Reader,

The 3rd part of the story of how I became unable to see and hear is finally here. Here are the 1st and 2nd parts of the story, in case you missed the previous posts, so you can have a better understanding of what happened.

It is becoming harder and harder to talk about this events and it is breaking my heart into more thousands of pieces just by thinking of them. But I started it, so I have to finish it.

In my previous post I said that I was yet again moved to another hospital: The National Institute of Cerebral Vascular Diseases. For the love of God, I didn’t understand why I had to be moved again! I thought that the treatment was going well and I finally started feeling a little safer and comfortable. While there, I remember saying:”But I can see myself in the mirror!”. I was faintly able to recognize myself in the mirror, I could see my mother’s blurred face. Right now, I would give anything to have even a quarter of what I could see back then. But my brain doesn’t want to give even 1% back. It is unbelievable and incredibly painful to lose so much in such a short time. read more

Dear Reader,

Thank you for coming back to read my story. If you are new here you should refer to part 1. Let’s continue with the story.

Last time I said that I had to see a specialist in infectious diseases. We were referred to The Hospital Of Infectiuos and Tropical Diseases „Victor Babes”, and a neurosurgeon at the Bagdasar-Arseni Emergency Hospital in the capital, Bucharest. Me and my parents arrived there on the 27th of November. Firstly, we went to see the neurosurgeon. He looked through my files and asked for the MRI scans. However, we didn’t have any because weren’t given anything of the sort when I was discharged. There was only the review made by the radiologist. He immediately lost interest in my case and his attitude expressed that I was wasting his time and that he was in a hurry as he was scheduled for a surgery. He basically kicked us out of the door. read more

Dear Readers,

It has been quite a while since my last post (100 days to be exact).I apologize for that, but I think I was waiting for something good to happen to report back to you. Many times I said I wasn’t ready to talk about what had happened to me, but I think it’s about time I shared my story to the world. My family has continuously searched for cases similar to mine. But they couldn’t find anything, because what has happened to me is something very rare and there isn’t much data. read more